After reblogging the spoon article I pointed my sister to read it. This led to a very insightful conversation with my sister. It’s not that I thought she didn’t understand my experience just that I was surprised how instinctively she recognized that the spoon explanation is not a perfect metaphor. Even I hadn’t noticed some of the issues it ignores.
So some add-ons to make it cover M.E. that my sister suggested:
- the number of spoons you start with in the morning is variable and not always dependent on yesterday’s activities. M.E. seems particularly sensitive to variations in daylight and atmospheric pressure.
- activities don’t have a set tariff of spoons i.e. the more tired you are the more spoons a given activity will take. On a good day eating breakfast will cost ‘one spoon’ but on a bad day it might cost ‘3 spoons’.
- above a certain number of spoons it is possible to borrow against tomorrow’s allotment however it will cost you more spoons than the activity would usually. i.e., it might cost one spoon to do today but it will reduce your starting total of spoons tomorrow by 3.
- under a certain number of spoons borrowing spoons is impossible and attempting to do so will led to a total meltdown of all spoons. It is this trying to borrow against tomorrow that leads to major relapses.
One other thing about M.E. is that your number of spoons varies and it is not always possible to work out how many you are starting with on a given day. I.e. when you first wake up you think it’s a good day and you have lots but by the time you have eaten breakfast you realize that you needed more spoons than usual to complete the activity and so actually must be on a low level of spoons today.
Camp began today! I actually made a good start 🙂 : 2,206 words. I only need 1,667 every day to ‘win’. I had an ‘easy’ chapter today. My new female point of view character, Victoria, is being very helpful and co-operative. Unlike my young male point of view character, Joshua, who keeps trying to go on plot detours despite my remonstrating with him. I think I’ve pacified him for now but I’ve come to dread seeing his name on a chapter heading; hPOe is definitely making me work for my streamlined plot.
Proofreading / editing
You might remember me moaning about transcribing interview over the last couple of days/weeks. Today mum finally submitted her assignment. This meant me having to employ the full range of my proofreading skills. Getting the flow in these experimental papers is really hard. The tight word count makes it tricky to cover everything needed in a succinct but fluent manner. I did manage to teach my mum a new grammar rule: the abbreviations etc., i.e., and e.g., should always be followed by a comma.
Right I will shut up now and go focus on the men’s gymnasts. Yum :-p
Hours Sleep Today so far : – 8 hours in 2 sessions 😐
Headache intensity / pain level : 4.5 😐
Nausea level : 6 😐
Joint / muscle pain : 4 😐
Fatigue : 5 😐
Brain Fog : 3.5 🙂